The Graying of AIDS

Stories From An Aging Pandemic

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Rodney, age 67 / Melbourne, Australia

December 1, 2014 by admin

I didn’t come out. I didn’t tell anyone. No one knew for 10 years. And I think that’s what helped me. You see, on that day I was told – because this was what you were told in those days – I was told that I could possibly be dead in 5 years, but if […]

Categories: Age 65-69, Asia-Pacific, Male • Tags: Australia, death/dying, disclosure, fear of transmission, grief/loss, pre/post-test counseling, support, treatment adherence

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Luwiza, age 51 / Lusaka, Zambia

December 1, 2014 by admin

Despite the health personnel saying that, “You isolate her,” my sister was there for me. My mother was there. Would sleep in the same room. My sister would be next to me on the same bed, you know. And that helped a lot. Because when your close relatives neglect you: Oooh! That is the worst […]

Categories: Africa, Age 50-54, Female • Tags: ACTIVISM, advocacy, children/parenthood, cost of treatment, employment/retirement, exercise/fitness, faith/spirituality, family, grandchildren, helping others, HIV/AIDS myths, keeping busy, NGOs, stigma, support, treatment access, Zambia

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Meng Lin, age 53 / Beijing, China

December 1, 2014 by admin

I told my family, and I do not have a full knowledge about HIV/AIDS, but I tell them I’m HIV-positive. The same day I’ve been kicked out by the family. And all my friends get away from me. But I am so lucky that I meet a very good doctor. She’s just like my mother. […]

Categories: Age 50-54, Asia-Pacific, Male • Tags: ACTIVISM, China, death/dying, depression, doctor/patient relationship, family, stigma, support, treatment access

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Ella, age “nearly 50” / Selangor, Malaysia

December 1, 2014 by admin

In year 2003 I already need to be on medications, but at that particle of time, that we need to pay about 1,000 ringget Malaysia, and my salary is less than 1,000. So… I, I stop seeing the doctor because the doctor says, “You need to be on medication.” I rather, you know, feed my […]

Categories: Age 50-54, Asia-Pacific, Female • Tags: children/parenthood, cost of treatment, death/dying, faith/spirituality, grandchildren, liver health, Malaysia, support, treatment access, Tuberculosis

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Katherine, age 56 / Adelaide, Australia

December 1, 2014 by admin

I always wanted a big family, you know – four to six children. My career was in childcare. I found out that I was positive and pregnant at the same time. My partner came with me, and we found out that he was also positive. And they basically said three things to us: “Don’t tell […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: Australia, children, death/dying, family, grandchildren, grief/loss, guilt, jail/incarceration, joy, married/life partner(s), pre/post-test counseling, stigma, substance use/recovery, support, working in HIV/AIDS community

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David, age 61 / Melbourne, Australia

December 1, 2014 by admin

I’ve really had a lot of AIDS-defining illnesses in the ‘90s, some of which I’ve lived with since. I’ve developed diabetes, and, as a consequence, probably accelerated by my use of the drug Tenofovir, I’ve developed some renal disease. It’s okay, but it needs to be watched. I had excessive HIV wasting in the ‘80s, […]

Categories: Age 60-64, Asia-Pacific, Male • Tags: Australia, AZT/early medications, co-morbidities, diabetes, exercise/fitness, frailty, Illness/Wellness, inflammation, mobility issues, pain, renal disease, support, wasting, weight

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Deloris, age 54 / New Jersey, “Jamerican” (USA & Jamaica)

December 1, 2014 by admin

I am very fortunate.  I’ve been able to educate myself to the graduate level.  I hold down a really decent job.  I make, in nonprofit, nonprofit-decent money. (Laughs) That’s a disclaimer. I think to live with HIV you have to have a lot of support.  And if they’re not coming from your family? You have […]

Categories: Age 50-54, Female, North America • Tags: Art/creativity, children/parenthood, companionship, dating/relationships, faith/spirituality, fear, grandchildren, HIV/AIDS education, isolation/loneliness, Jamaica, keeping busy, support, trauma, United States, Work/Career, working in HIV/AIDS community

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Art, age 62 / Lac des Mille Lacs First Nation, Anishnawbe / Toronto, Canada

December 1, 2014 by admin

I’m 62 now, but I came out when I was 26. So it was quite late. And back then, being out was not– it was sometimes, in the aboriginal communities, you might bring shame to the family, to the community, by announcing. But when I came out, then it was no going back. And I […]

Categories: Age 60-64, North America, Trans / Non-Binary / Two-Spirit • Tags: Aboriginal/Indigenous/First Nations, advocacy, Canada, discrimination, family, support

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Bill, age 64 / Cairns, Australia

December 1, 2014 by admin

It’s very difficult to meet positive people, because mostly, they’re still too afraid to come out and disclose their status to almost anyone. And I really would like to have a positive partner. I don’t ever want to infect anyone with this thing – because although it’s not a death sentence anymore, it still is […]

Categories: Age 60-64, Asia-Pacific, Male • Tags: Australia, children/parenthood, companionship, dating/relationships, disclosure, family, fear of transmission, libido, love, married/life partner(s), positive partners, stigma, support

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Doris, age 58 & Randy, age 48 / Canada

November 30, 2014 by admin

Doris:       I was caught up in my addictions, and I thought the weight loss was connected to my substance use, until I started seeing other complications with my health. And that’s when I went for an HIV test. While waiting for my HIV test, I made the decision to go back home, because […]

Categories: Age 55-59, Female, North America, Trans / Non-Binary / Two-Spirit • Tags: Aboriginal/Indigenous/First Nations, ACTIVISM, anger, Art/creativity, Canada, children/parenthood, death/dying, domestic violence, faith/spirituality, family, grandchildren, HIV/AIDS education, love, moving home, NGOs, sexual violence, stigma, substance use/recovery, support, trauma, weight

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