The Graying of AIDS

Stories From An Aging Pandemic

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Phumzile, age 52 / Johannesburg, South Africa

June 5, 2018 by admin

We need to remember that HIV is a justice issue. If we don’t deal with the structural injustices, people will continue being vulnerable to HIV and AIDS. The religious community has a responsibility to spread positive messages and if we still have negative messages within our religious contexts, I believe that those messages […]

Categories: Africa, Age 50-54, Female • Tags: advocacy, anger, arthritis, body image, caregiving, Caring for Older Adults, children/parenthood, dating, death/dying, depression, diabetes, dignity/respect, doctor/patient relationship, employment/retirement, exercise/fitness, faith/spirituality, family, finances, helping others, HIV/AIDS education, human rights, intergenerational, justice, life experience/age as an asset, married/life partner(s), menopause, positive outlook, pre/post-test counseling, sex/sexuality, side effects, South Africa, stigma, stress, support, treatement access, weight, Women & Girls

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Ron, age 50 / District of Columbia, USA

December 2, 2017 by admin

I was a closeted gay man working in international development. I had been a Peace Corps volunteer and was going to school for public health, but taking short contracts to pay for school. I was living and working in Mali, in West Africa. This was the year 1994. I needed to have […]

Categories: Age 50-54, Male, North America • Tags: ACTIVISM, advocacy, clinical trials, co-morbidities, death/dying, employment/retirement, faith/spirituality, family, finances, gratitude, grief/loss, Healthcare access, intergenerational, Kaposi sarcoma, long-range thinking, long-term survivors, Mali, meditation, NGOs, opportunistic infections, positive outlook, pre/post-test counseling, privilege, stigma, support, treatment access, United States, working in HIV/AIDS community

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Proscovia, age 55 / Tororo, Uganda

December 1, 2017 by admin

For a long time, I have been working with the media. I have been writing my stories, and that’s how I’ve been getting support. That has allowed me to be what I am today. I trained as teacher, and so at a teacher’s college I was taking charge of adolescent youth, and that was […]

Categories: Africa, Age 55-59, Female • Tags: ACTIVISM, advocacy, caregiving, children/parenthood, class, Corruption, dating, disclosure, domestic violence, employment discrimination, employment/retirement, faith/spirituality, family, finances, grandchildren, helping others, Housing, inheritance/wills, intergenerational, isolation, married/life partner(s), NGOs, nutrition, opportunistic infections, pre/post-test counseling, side effects, stigma, stress, support, treatment access, treatment adherence, Uganda, Viral load/”undetectable”, World AIDS Day

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Susan, age 54 / New York, USA

June 19, 2017 by admin

I guess I don’t even think about it too much anymore. In the first few years? Like, almost 24/7, it was something that was on my mind: am I gonna be around for my kids? I didn’t even think about grandkids at that time. And I always worried that my daughter would […]

Categories: Age 50-54, Female, North America • Tags: advocacy, anger, cancer, caregiving, CD4 count, children/parenthood, death/dying, disclosure, employment/retirement, family, grandchildren, helping others, HIV/AIDS education, intergenerational, isolation, life experience/age as an asset, married/life partner(s), mother-to-child transmission, nutrition, positive outlook, stress, stroke, support, United States, Women & Girls, working in HIV/AIDS community

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Jesse, age 59 / Ellicot City, Maryland, USA

June 9, 2017 by admin

I was aware that I was likely positive. My late partner died of AIDS in 1985, and I am very certain that I had a transmission in about September of 1982 because I had a sexual encounter with my partner and the immediate biological response was a classic transmission response. And those symptoms were […]

Categories: Age 55-59, Male, North America • Tags: ACTIVISM, advocacy, AZT/pre-"cocktail" medications, caregiving, Caring for Older Adults, coordinated care, death/dying, doctor/patient relationship, drug interactions, employment discrimination, faith/spirituality, family, finances, gratitude, heart health, HIV & the law, kidney health, long-range thinking, long-term survivors, married/life partner, personalized treatment, polypharmacy, serodiscordant couple, Social Security/Medicare, support, United States

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Hope, age 62/Francistown, Botswana

June 6, 2017 by admin

I was working with a family, and somebody had some kind of blisters that week. I was in Australia then. I was away from home, I was away from a lot of people. I was alone. Even though I was in denial, I knew what this was, because I had been unwell. I don’t remember […]

Categories: Africa, Age 60-64, Female • Tags: ageism, Art/creativity, Australia, body image, Botswana, caregiving, Caring for Older Adults, class, dating, death/dying, disclosure, doctor/patient relationship, employment/retirement, family, grief/loss, healthcare professional, helping others, HIV & the law, HIV/AIDS education, Immigration, isolation, married/life partner, Neuropathy, pain, polypharmacy, sex/sexuality, shingles, side effects, stigma, stress, support, treatment access, United States, weight

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Jesus, age 56/Mexico & California, USA

June 5, 2017 by admin

I arrived to USA in 1984. I knew what started to be in the news, everything about the gay cancer and things. Honestly I was not jumping from bed to bed or things like that – I was kind of “a good boy” – but still, I was having sex. And I was really […]

Categories: Age 55-59, Male, North America, uncategorized • Tags: ageism, alternative medicine, dating, denial, dignity/respect, disclosure, helping others, HIV & the law, Housing, Immigration, Kaposi sarcoma, long-term survivors, Mexico, Neuropathy, pain, stress, support, United States

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Julian, age 58/ South London, United Kingdom

July 17, 2016 by admin

I’m the typical “helper.” Actually that’s really good therapy, it makes you reflect upon yourself. I was an activist in the ‘70s, in gay liberation, and then I was part of the first UK response to HIV in 1982, 1983, and set up organizations and help lines and things like that. I never had a […]

Categories: Age 55-59, Europe, Male • Tags: ACTIVISM, death/dying, disability, early antiretroviral medications, England, family, finances, gay liberation, gratitude, grief/loss, Healthcare access, helping others, HIV/AIDS community dynamics, pre/post-test counseling, privilege, stigma, support, treatment access, United Kingdom, Work/Career, working in HIV/AIDS community

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Betti, age 51 / Abidjan, Ivory Coast

July 14, 2016 by admin

I discovered my status after I gave birth, in 1997. I was sick and I went to see a doctor at the hospital. I asked for a checkup and they told me that I had HIV. The child was breastfed, and I didn’t know, so she got contaminated. It was already difficult for me to […]

Categories: Africa, Age 50-54, Female • Tags: children/parenthood, cost of treatment, denial, family, fatigue, grief/loss, Ivory Coast, libido, married/life partner(s), menopause, mother-to-child transmission, NGOs, positive outlook, sex/sexuality, stress, support, treatment access

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Dave, 68 / California, USA

December 2, 2014 by admin

We got kicked out of our church. We got kicked out of our small group. The pastor was in visiting me when the doctor told me, and he told his wife. And so we ended up having to leave the church, and then about a year later we walked into our small group that we […]

Categories: Age 65-69, Male, North America • Tags: faith/spirituality, helping others, married/life partner, stigma, support, support group, United States

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Michael, age 62 / Auckland, New Zealand

December 2, 2014 by admin

I was diagnosed in September 2010. I’ve only had it 4 years. It couldn’t have been much earlier than that. Because I was in a relationship, and then after that relationship finished I got promiscuous and thought to see if I still had it at my age. And yeah, then started experimenting again. I’m a […]

Categories: Age 60-64, Asia-Pacific, Male • Tags: children/parenthood, disclosure, family, grandchildren, HIV, HIV/AIDS education, New Zealand, Recent diagnosis, sex/sexuality, stigma, support

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Suzanne, age 59 / Melbourne, Australia

December 1, 2014 by admin

I first learned that I was HIV-positive in a letter from a doctor. I’d been working in a little hospital in rural Africa, but I had to go away somewhere else to find a GP to take my blood, because there was just the risk of too much scrutiny, and confidentiality – I didn’t feel […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: Australia, children/parenthood, China, dating/relationships, disclosure, family, healthcare professional, HIV & the law, HIV/AIDS community dynamics, HIV/AIDS education, Immigration, pre/post-test counseling, support, Zimbabwe

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