The Graying of AIDS

Stories From An Aging Pandemic

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Phumzile, age 52 / Johannesburg, South Africa

June 5, 2018 by admin

    We need to remember that HIV is a justice issue. If we don’t deal with the structural injustices, people will continue being vulnerable to HIV and AIDS. The religious community has a responsibility to spread positive messages and if we still have negative messages within our religious contexts, I believe that those messages […]

Categories: Africa, Age 50-54, Female • Tags: advocacy, anger, arthritis, body image, caregiving, Caring for Older Adults, children/parenthood, dating, death/dying, depression, diabetes, dignity/respect, doctor/patient relationship, employment/retirement, exercise/fitness, faith/spirituality, family, finances, helping others, HIV/AIDS education, human rights, intergenerational, justice, life experience/age as an asset, married/life partner(s), menopause, positive outlook, pre/post-test counseling, sex/sexuality, side effects, South Africa, stigma, stress, support, treatement access, weight, Women & Girls

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Proscovia, age 55 / Tororo, Uganda

December 1, 2017 by admin

  For a long time, I have been working with the media. I have been writing my stories, and that’s how I’ve been getting support. That has allowed me to be what I am today. I trained as teacher, and so at a teacher’s college I was taking charge of adolescent youth, and that was […]

Categories: Africa, Age 55-59, Female • Tags: ACTIVISM, advocacy, caregiving, children/parenthood, class, Corruption, dating, disclosure, domestic violence, employment discrimination, employment/retirement, faith/spirituality, family, finances, grandchildren, helping others, Housing, inheritance/wills, intergenerational, isolation, married/life partner(s), NGOs, nutrition, opportunistic infections, pre/post-test counseling, side effects, stigma, stress, support, treatment access, treatment adherence, Uganda, Viral load/”undetectable”, World AIDS Day

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Hope, age 62/Francistown, Botswana

June 6, 2017 by admin

I was working with a family, and somebody had some kind of blisters that week. I was in Australia then. I was away from home, I was away from a lot of people. I was alone. Even though I was in denial, I knew what this was, because I had been unwell. I don’t remember […]

Categories: Africa, Age 60-64, Female • Tags: ageism, Art/creativity, Australia, body image, Botswana, caregiving, Caring for Older Adults, class, dating, death/dying, disclosure, doctor/patient relationship, employment/retirement, family, grief/loss, healthcare professional, helping others, HIV & the law, HIV/AIDS education, Immigration, isolation, married/life partner, Neuropathy, pain, polypharmacy, sex/sexuality, shingles, side effects, stigma, stress, support, treatment access, United States, weight

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Nomampondo, age 52 / Johannesburg, South Africa

December 2, 2016 by admin

    At least be there for the mothers! I always tell my daughter that she saw me struggling in front of her, bringing them up as a single parent. She has to be there for their mother–  for her kids as well. We were the faces of AIDS in the beginning, during those difficult […]

Categories: Africa, Age 50-54, Female • Tags: advocacy, ageism, caregiving, confidentiality, death/dying, disclosure, doctor/patient relationship, employment discrimination, family, guilt, memory/brain health, Neuropathy, night sweats, polypharmacy, shingles, side effects, South Africa, stigma, TB, treatment access

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JP, age 52 /Namibia and Vattholma, Sweden

December 1, 2016 by admin

My partner at the time was having problems with his eyes. I had been speaking to him for some time about getting tested together. I said to him, “It’s time, now. I’m not suggesting any more – it’s time.” When he tested positive, I said, “Forget the test. Just do my CD4 count.” But they […]

Categories: Africa, Age 50-54, Europe, Male • Tags: ACTIVISM, advocacy, CD4 count, clinical trials, death/dying, faith/spirituality, kidney health, liver health, married/life partner(s), medication, Namibia, personalized treatment, side effects, Sweden, treatment access, Viral load/”undetectable”, working in HIV/AIDS community

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Glenn, age 50 / Newcastle, Australia

November 30, 2014 by admin

I think it’s harder now to live up to the expectation that you’re well.  People think that HIV has been finished. That the treatments are great and everyone’s fantastic. Because “the drugs are working so well now.” “We’ve solved the issues.” “There’s no more side effects.” “Yeah, it’s all done.” Um, no it’s not. And […]

Categories: Age 50-54, Asia-Pacific, Male • Tags: Australia, fear, grief/loss, Healthcare access, HIV/AIDS community dynamics, Illness/Wellness, side effects, treatment access, Work/Career

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Claire, age 55/ San Francisco, CA, USA

November 30, 2014 by admin

I just remember being very naïve, you know, and people would tell me to do something, and I would do it. I didn’t know any better. The good news is is that they told me– this is when AZT was the only treatment. And they put me on AZT and I just took it, because […]

Categories: Age 55-59, Female, North America • Tags: AZT/early medications, gratitude, HIV/AIDS education, HIV/AIDS myths, Illness/Wellness, life experience/age as an asset, privilege, shame, side effects, treatment adherence, United States

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