The Graying of AIDS

Stories From An Aging Pandemic

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Phumzile, age 52 / Johannesburg, South Africa

June 5, 2018 by admin

We need to remember that HIV is a justice issue. If we don’t deal with the structural injustices, people will continue being vulnerable to HIV and AIDS. The religious community has a responsibility to spread positive messages and if we still have negative messages within our religious contexts, I believe that those messages […]

Categories: Africa, Age 50-54, Female • Tags: advocacy, anger, arthritis, body image, caregiving, Caring for Older Adults, children/parenthood, dating, death/dying, depression, diabetes, dignity/respect, doctor/patient relationship, employment/retirement, exercise/fitness, faith/spirituality, family, finances, helping others, HIV/AIDS education, human rights, intergenerational, justice, life experience/age as an asset, married/life partner(s), menopause, positive outlook, pre/post-test counseling, sex/sexuality, side effects, South Africa, stigma, stress, support, treatement access, weight, Women & Girls

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Sebastian, age 65 / Harare, Zimbabwe

December 3, 2017 by admin

I remember it was about 15 years ago. I was constantly sick and I didn’t know what was wrong with me. When I was hospitalized for the last time, when I was very, very ill, it was a teaching hospital. A group of students surrounded me and they were asked by a senior doctor […]

Categories: Africa, Age 65-69, Male • Tags: advocacy, ageism, burial, caregiving, Caring for Older Adults, children/parenthood, cost of treatment, death/dying, dignity/respect, disclosure, doctor/patient relationship, family, grandchildren, helping others, HIV/AIDS education, HIV/AIDS myths, intergenerational, life experience/age as an asset, married/life partner(s), moving home, pre/post-test counseling, rural health, stigma, stress, support groups, treatment access, Zimbabwe

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Ron, age 50 / District of Columbia, USA

December 2, 2017 by admin

I was a closeted gay man working in international development. I had been a Peace Corps volunteer and was going to school for public health, but taking short contracts to pay for school. I was living and working in Mali, in West Africa. This was the year 1994. I needed to have […]

Categories: Age 50-54, Male, North America • Tags: ACTIVISM, advocacy, clinical trials, co-morbidities, death/dying, employment/retirement, faith/spirituality, family, finances, gratitude, grief/loss, Healthcare access, intergenerational, Kaposi sarcoma, long-range thinking, long-term survivors, Mali, meditation, NGOs, opportunistic infections, positive outlook, pre/post-test counseling, privilege, stigma, support, treatment access, United States, working in HIV/AIDS community

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Proscovia, age 55 / Tororo, Uganda

December 1, 2017 by admin

For a long time, I have been working with the media. I have been writing my stories, and that’s how I’ve been getting support. That has allowed me to be what I am today. I trained as teacher, and so at a teacher’s college I was taking charge of adolescent youth, and that was […]

Categories: Africa, Age 55-59, Female • Tags: ACTIVISM, advocacy, caregiving, children/parenthood, class, Corruption, dating, disclosure, domestic violence, employment discrimination, employment/retirement, faith/spirituality, family, finances, grandchildren, helping others, Housing, inheritance/wills, intergenerational, isolation, married/life partner(s), NGOs, nutrition, opportunistic infections, pre/post-test counseling, side effects, stigma, stress, support, treatment access, treatment adherence, Uganda, Viral load/”undetectable”, World AIDS Day

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Kim, age 59/Melbourne, Australia

June 7, 2017 by admin

I first learned I was positive in 1994. I was unwell and went to a friend of mine who was my doctor as well, and he just threw every test at me possible, and a couple of weeks later he hadn’t got back to me, so I rang him. I just happened to be […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: advocacy, Art/creativity, Australia, caregiving, children/parenthood, doctor/patient relationship, family, helping others, HIV/AIDS community dynamics, HIV/AIDS education, pre/post-test counseling, stigma, Women & Girls, working in HIV/AIDS community

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Olive, age 53/ Saint Catherine, Jamaica

December 1, 2016 by admin

I actually don’t do “My Story.” I don’t do testimonies. People like other people’s business, so it’s not what I do. It’s about the issues. The challenges of really living and coping, and serving, and supporting, and peer needs and so on. Yeah. It’s fine what we are going to be doing, in that it […]

Categories: Age 50-54, Female, North America • Tags: celibacy, dating, disclosure, doctor/patient relationship, employment/retirement, faith/spirituality, family, helping others, HIV/AIDS community dynamics, HIV/AIDS education, intergenerational, Jamaica, life experience/age as an asset, pre/post-test counseling, sex/sexuality, stigma, support groups, treatment a, working in HIV/AIDS community

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Julian, age 58/ South London, United Kingdom

July 17, 2016 by admin

I’m the typical “helper.” Actually that’s really good therapy, it makes you reflect upon yourself. I was an activist in the ‘70s, in gay liberation, and then I was part of the first UK response to HIV in 1982, 1983, and set up organizations and help lines and things like that. I never had a […]

Categories: Age 55-59, Europe, Male • Tags: ACTIVISM, death/dying, disability, early antiretroviral medications, England, family, finances, gay liberation, gratitude, grief/loss, Healthcare access, helping others, HIV/AIDS community dynamics, pre/post-test counseling, privilege, stigma, support, treatment access, United Kingdom, Work/Career, working in HIV/AIDS community

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Gerome, age 51 / Abbotsford, Australia

December 15, 2014 by admin

I think that my story is personal, it’s unique, and it is not tragic. And, I think it’s something that is probably a little bit different from other people’s stories, because I took it more as a relief that I don’t have to fear HIV anymore. I don’t have to – there was no fear […]

Categories: Age 50-54, Asia-Pacific, Male • Tags: Australia, celibacy, dating/relationships, disclosure, faith/spirituality, family, fear of transmission, France, Healthcare access, homophobia, love, Philippines, pre/post-test counseling, Recent diagnosis, relief, serodiscordant couple, sex/sexuality, stigma, Tanzania, treatment access, Viral load/”undetectable”

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Suzanne, age 59 / Melbourne, Australia

December 1, 2014 by admin

I first learned that I was HIV-positive in a letter from a doctor. I’d been working in a little hospital in rural Africa, but I had to go away somewhere else to find a GP to take my blood, because there was just the risk of too much scrutiny, and confidentiality – I didn’t feel […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: Australia, children/parenthood, China, dating/relationships, disclosure, family, healthcare professional, HIV & the law, HIV/AIDS community dynamics, HIV/AIDS education, Immigration, pre/post-test counseling, support, Zimbabwe

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Rodney, age 67 / Melbourne, Australia

December 1, 2014 by admin

I didn’t come out. I didn’t tell anyone. No one knew for 10 years. And I think that’s what helped me. You see, on that day I was told – because this was what you were told in those days – I was told that I could possibly be dead in 5 years, but if […]

Categories: Age 65-69, Asia-Pacific, Male • Tags: Australia, death/dying, disclosure, fear of transmission, grief/loss, pre/post-test counseling, support, treatment adherence

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Katherine, age 56 / Adelaide, Australia

December 1, 2014 by admin

I always wanted a big family, you know – four to six children. My career was in childcare. I found out that I was positive and pregnant at the same time. My partner came with me, and we found out that he was also positive. And they basically said three things to us: “Don’t tell […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: Australia, children, death/dying, family, grandchildren, grief/loss, guilt, jail/incarceration, joy, married/life partner(s), pre/post-test counseling, stigma, substance use/recovery, support, working in HIV/AIDS community

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