The Graying of AIDS

Stories From An Aging Pandemic

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Phumzile, age 52 / Johannesburg, South Africa

June 5, 2018 by admin

We need to remember that HIV is a justice issue. If we don’t deal with the structural injustices, people will continue being vulnerable to HIV and AIDS. The religious community has a responsibility to spread positive messages and if we still have negative messages within our religious contexts, I believe that those messages […]

Categories: Africa, Age 50-54, Female • Tags: advocacy, anger, arthritis, body image, caregiving, Caring for Older Adults, children/parenthood, dating, death/dying, depression, diabetes, dignity/respect, doctor/patient relationship, employment/retirement, exercise/fitness, faith/spirituality, family, finances, helping others, HIV/AIDS education, human rights, intergenerational, justice, life experience/age as an asset, married/life partner(s), menopause, positive outlook, pre/post-test counseling, sex/sexuality, side effects, South Africa, stigma, stress, support, treatement access, weight, Women & Girls

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Sebastian, age 65 / Harare, Zimbabwe

December 3, 2017 by admin

I remember it was about 15 years ago. I was constantly sick and I didn’t know what was wrong with me. When I was hospitalized for the last time, when I was very, very ill, it was a teaching hospital. A group of students surrounded me and they were asked by a senior doctor […]

Categories: Africa, Age 65-69, Male • Tags: advocacy, ageism, burial, caregiving, Caring for Older Adults, children/parenthood, cost of treatment, death/dying, dignity/respect, disclosure, doctor/patient relationship, family, grandchildren, helping others, HIV/AIDS education, HIV/AIDS myths, intergenerational, life experience/age as an asset, married/life partner(s), moving home, pre/post-test counseling, rural health, stigma, stress, support groups, treatment access, Zimbabwe

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Susan, age 54 / New York, USA

June 19, 2017 by admin

I guess I don’t even think about it too much anymore. In the first few years? Like, almost 24/7, it was something that was on my mind: am I gonna be around for my kids? I didn’t even think about grandkids at that time. And I always worried that my daughter would […]

Categories: Age 50-54, Female, North America • Tags: advocacy, anger, cancer, caregiving, CD4 count, children/parenthood, death/dying, disclosure, employment/retirement, family, grandchildren, helping others, HIV/AIDS education, intergenerational, isolation, life experience/age as an asset, married/life partner(s), mother-to-child transmission, nutrition, positive outlook, stress, stroke, support, United States, Women & Girls, working in HIV/AIDS community

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Kim, age 59/Melbourne, Australia

June 7, 2017 by admin

I first learned I was positive in 1994. I was unwell and went to a friend of mine who was my doctor as well, and he just threw every test at me possible, and a couple of weeks later he hadn’t got back to me, so I rang him. I just happened to be […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: advocacy, Art/creativity, Australia, caregiving, children/parenthood, doctor/patient relationship, family, helping others, HIV/AIDS community dynamics, HIV/AIDS education, pre/post-test counseling, stigma, Women & Girls, working in HIV/AIDS community

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Hope, age 62/Francistown, Botswana

June 6, 2017 by admin

I was working with a family, and somebody had some kind of blisters that week. I was in Australia then. I was away from home, I was away from a lot of people. I was alone. Even though I was in denial, I knew what this was, because I had been unwell. I don’t remember […]

Categories: Africa, Age 60-64, Female • Tags: ageism, Art/creativity, Australia, body image, Botswana, caregiving, Caring for Older Adults, class, dating, death/dying, disclosure, doctor/patient relationship, employment/retirement, family, grief/loss, healthcare professional, helping others, HIV & the law, HIV/AIDS education, Immigration, isolation, married/life partner, Neuropathy, pain, polypharmacy, sex/sexuality, shingles, side effects, stigma, stress, support, treatment access, United States, weight

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Olive, age 53/ Saint Catherine, Jamaica

December 1, 2016 by admin

I actually don’t do “My Story.” I don’t do testimonies. People like other people’s business, so it’s not what I do. It’s about the issues. The challenges of really living and coping, and serving, and supporting, and peer needs and so on. Yeah. It’s fine what we are going to be doing, in that it […]

Categories: Age 50-54, Female, North America • Tags: celibacy, dating, disclosure, doctor/patient relationship, employment/retirement, faith/spirituality, family, helping others, HIV/AIDS community dynamics, HIV/AIDS education, intergenerational, Jamaica, life experience/age as an asset, pre/post-test counseling, sex/sexuality, stigma, support groups, treatment a, working in HIV/AIDS community

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Michael, age 62 / Auckland, New Zealand

December 2, 2014 by admin

I was diagnosed in September 2010. I’ve only had it 4 years. It couldn’t have been much earlier than that. Because I was in a relationship, and then after that relationship finished I got promiscuous and thought to see if I still had it at my age. And yeah, then started experimenting again. I’m a […]

Categories: Age 60-64, Asia-Pacific, Male • Tags: children/parenthood, disclosure, family, grandchildren, HIV, HIV/AIDS education, New Zealand, Recent diagnosis, sex/sexuality, stigma, support

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Suzanne, age 59 / Melbourne, Australia

December 1, 2014 by admin

I first learned that I was HIV-positive in a letter from a doctor. I’d been working in a little hospital in rural Africa, but I had to go away somewhere else to find a GP to take my blood, because there was just the risk of too much scrutiny, and confidentiality – I didn’t feel […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: Australia, children/parenthood, China, dating/relationships, disclosure, family, healthcare professional, HIV & the law, HIV/AIDS community dynamics, HIV/AIDS education, Immigration, pre/post-test counseling, support, Zimbabwe

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Deloris, age 54 / New Jersey, “Jamerican” (USA & Jamaica)

December 1, 2014 by admin

I am very fortunate. I’ve been able to educate myself to the graduate level. I hold down a really decent job. I make, in nonprofit, nonprofit-decent money. (Laughs) That’s a disclaimer. I think to live with HIV you have to have a lot of support. And if they’re not coming from your family? You have […]

Categories: Age 50-54, Female, North America • Tags: Art/creativity, children/parenthood, companionship, dating/relationships, faith/spirituality, fear, grandchildren, HIV/AIDS education, isolation/loneliness, Jamaica, keeping busy, support, trauma, United States, Work/Career, working in HIV/AIDS community

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Doris, age 58 & Randy, age 48 / Canada

November 30, 2014 by admin

Doris: I was caught up in my addictions, and I thought the weight loss was connected to my substance use, until I started seeing other complications with my health. And that’s when I went for an HIV test. While waiting for my HIV test, I made the decision to go back home, because […]

Categories: Age 55-59, Female, North America, Trans / Non-Binary / Two-Spirit • Tags: Aboriginal/Indigenous/First Nations, ACTIVISM, anger, Art/creativity, Canada, children/parenthood, death/dying, domestic violence, faith/spirituality, family, grandchildren, HIV/AIDS education, love, moving home, NGOs, sexual violence, stigma, substance use/recovery, support, trauma, weight

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Claire, age 55/ San Francisco, CA, USA

November 30, 2014 by admin

I just remember being very naïve, you know, and people would tell me to do something, and I would do it. I didn’t know any better. The good news is is that they told me– this is when AZT was the only treatment. And they put me on AZT and I just took it, because […]

Categories: Age 55-59, Female, North America • Tags: AZT/early medications, gratitude, HIV/AIDS education, HIV/AIDS myths, Illness/Wellness, life experience/age as an asset, privilege, shame, side effects, treatment adherence, United States

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