The Graying of AIDS

Stories From An Aging Pandemic

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Sebastian, age 65 / Harare, Zimbabwe

December 3, 2017 by admin

I remember it was about 15 years ago. I was constantly sick and I didn’t know what was wrong with me. When I was hospitalized for the last time, when I was very, very ill, it was a teaching hospital. A group of students surrounded me and they were asked by a senior doctor […]

Categories: Africa, Age 65-69, Male • Tags: advocacy, ageism, burial, caregiving, Caring for Older Adults, children/parenthood, cost of treatment, death/dying, dignity/respect, disclosure, doctor/patient relationship, family, grandchildren, helping others, HIV/AIDS education, HIV/AIDS myths, intergenerational, life experience/age as an asset, married/life partner(s), moving home, pre/post-test counseling, rural health, stigma, stress, support groups, treatment access, Zimbabwe

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Proscovia, age 55 / Tororo, Uganda

December 1, 2017 by admin

For a long time, I have been working with the media. I have been writing my stories, and that’s how I’ve been getting support. That has allowed me to be what I am today. I trained as teacher, and so at a teacher’s college I was taking charge of adolescent youth, and that was […]

Categories: Africa, Age 55-59, Female • Tags: ACTIVISM, advocacy, caregiving, children/parenthood, class, Corruption, dating, disclosure, domestic violence, employment discrimination, employment/retirement, faith/spirituality, family, finances, grandchildren, helping others, Housing, inheritance/wills, intergenerational, isolation, married/life partner(s), NGOs, nutrition, opportunistic infections, pre/post-test counseling, side effects, stigma, stress, support, treatment access, treatment adherence, Uganda, Viral load/”undetectable”, World AIDS Day

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Susan, age 54 / New York, USA

June 19, 2017 by admin

I guess I don’t even think about it too much anymore. In the first few years? Like, almost 24/7, it was something that was on my mind: am I gonna be around for my kids? I didn’t even think about grandkids at that time. And I always worried that my daughter would […]

Categories: Age 50-54, Female, North America • Tags: advocacy, anger, cancer, caregiving, CD4 count, children/parenthood, death/dying, disclosure, employment/retirement, family, grandchildren, helping others, HIV/AIDS education, intergenerational, isolation, life experience/age as an asset, married/life partner(s), mother-to-child transmission, nutrition, positive outlook, stress, stroke, support, United States, Women & Girls, working in HIV/AIDS community

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Jane, age 57 / Auckland, New Zealand

December 10, 2014 by admin

Sometimes, I allow myself to have a wallow day. But it doesn’t happen much now. It used to happen. I cried a lot in the first years. I find now that it’s very difficult to cry. I seem to have hardened quite a lot. And I guess it’s just about, you know, you see a […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: AZT/early medications, children/parenthood, dating/relationships, denial, disclosure, family, grandchildren, grief/loss, helping others, insecurity, isolation/loneliness, Lipodystrophy, moving home, New Zealand, positive partners, weight/body image, Work/Career

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Michael, age 62 / Auckland, New Zealand

December 2, 2014 by admin

I was diagnosed in September 2010. I’ve only had it 4 years. It couldn’t have been much earlier than that. Because I was in a relationship, and then after that relationship finished I got promiscuous and thought to see if I still had it at my age. And yeah, then started experimenting again. I’m a […]

Categories: Age 60-64, Asia-Pacific, Male • Tags: children/parenthood, disclosure, family, grandchildren, HIV, HIV/AIDS education, New Zealand, Recent diagnosis, sex/sexuality, stigma, support

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Luwiza, age 51 / Lusaka, Zambia

December 1, 2014 by admin

Despite the health personnel saying that, “You isolate her,” my sister was there for me. My mother was there. Would sleep in the same room. My sister would be next to me on the same bed, you know. And that helped a lot. Because when your close relatives neglect you: Oooh! That is the worst […]

Categories: Africa, Age 50-54, Female • Tags: ACTIVISM, advocacy, children/parenthood, cost of treatment, employment/retirement, exercise/fitness, faith/spirituality, family, grandchildren, helping others, HIV/AIDS myths, keeping busy, NGOs, stigma, support, treatment access, Zambia

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Ella, age “nearly 50” / Selangor, Malaysia

December 1, 2014 by admin

In year 2003 I already need to be on medications, but at that particle of time, that we need to pay about 1,000 ringget Malaysia, and my salary is less than 1,000. So… I, I stop seeing the doctor because the doctor says, “You need to be on medication.” I rather, you know, feed my […]

Categories: Age 50-54, Asia-Pacific, Female • Tags: children/parenthood, cost of treatment, death/dying, faith/spirituality, grandchildren, liver health, Malaysia, support, treatment access, Tuberculosis

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Katherine, age 56 / Adelaide, Australia

December 1, 2014 by admin

I always wanted a big family, you know – four to six children. My career was in childcare. I found out that I was positive and pregnant at the same time. My partner came with me, and we found out that he was also positive. And they basically said three things to us: “Don’t tell […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: Australia, children, death/dying, family, grandchildren, grief/loss, guilt, jail/incarceration, joy, married/life partner(s), pre/post-test counseling, stigma, substance use/recovery, support, working in HIV/AIDS community

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Deloris, age 54 / New Jersey, “Jamerican” (USA & Jamaica)

December 1, 2014 by admin

I am very fortunate. I’ve been able to educate myself to the graduate level. I hold down a really decent job. I make, in nonprofit, nonprofit-decent money. (Laughs) That’s a disclaimer. I think to live with HIV you have to have a lot of support. And if they’re not coming from your family? You have […]

Categories: Age 50-54, Female, North America • Tags: Art/creativity, children/parenthood, companionship, dating/relationships, faith/spirituality, fear, grandchildren, HIV/AIDS education, isolation/loneliness, Jamaica, keeping busy, support, trauma, United States, Work/Career, working in HIV/AIDS community

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Bev, age 63 / Gunditjmara Nation, Wangaratta, Australia

December 1, 2014 by admin

I don’t feel OLD old, ‘cause I’m still feeling young, because I’m still here, you know. I feel really grateful that I don’t ponder on, oh, you know, I’m turning into this old woman or anything. I used to be offended when, say 10 years ago, when people would stand up for me in the […]

Categories: Age 60-64, Asia-Pacific, Female • Tags: Aboriginal/Indigenous/First Nations, Australia, children/parenthood, grandchildren, gratitude, life experience/age as an asset, positive outlook

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Doris, age 58 & Randy, age 48 / Canada

November 30, 2014 by admin

Doris: I was caught up in my addictions, and I thought the weight loss was connected to my substance use, until I started seeing other complications with my health. And that’s when I went for an HIV test. While waiting for my HIV test, I made the decision to go back home, because […]

Categories: Age 55-59, Female, North America, Trans / Non-Binary / Two-Spirit • Tags: Aboriginal/Indigenous/First Nations, ACTIVISM, anger, Art/creativity, Canada, children/parenthood, death/dying, domestic violence, faith/spirituality, family, grandchildren, HIV/AIDS education, love, moving home, NGOs, sexual violence, stigma, substance use/recovery, support, trauma, weight

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