The Graying of AIDS

Stories From An Aging Pandemic

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Phumzile, age 52 / Johannesburg, South Africa

June 5, 2018 by admin

    We need to remember that HIV is a justice issue. If we don’t deal with the structural injustices, people will continue being vulnerable to HIV and AIDS. The religious community has a responsibility to spread positive messages and if we still have negative messages within our religious contexts, I believe that those messages […]

Categories: Africa, Age 50-54, Female • Tags: advocacy, anger, arthritis, body image, caregiving, Caring for Older Adults, children/parenthood, dating, death/dying, depression, diabetes, dignity/respect, doctor/patient relationship, employment/retirement, exercise/fitness, faith/spirituality, family, finances, helping others, HIV/AIDS education, human rights, intergenerational, justice, life experience/age as an asset, married/life partner(s), menopause, positive outlook, pre/post-test counseling, sex/sexuality, side effects, South Africa, stigma, stress, support, treatement access, weight, Women & Girls

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Ron, age 50 / District of Columbia, USA

December 2, 2017 by admin

      I was a closeted gay man working in international development. I had been a Peace Corps volunteer and was going to school for public health, but taking short contracts to pay for school. I was living and working in Mali, in West Africa. This was the year 1994. I needed to have […]

Categories: Age 50-54, Male, North America • Tags: ACTIVISM, advocacy, clinical trials, co-morbidities, death/dying, employment/retirement, faith/spirituality, family, finances, gratitude, grief/loss, Healthcare access, intergenerational, Kaposi sarcoma, long-range thinking, long-term survivors, Mali, meditation, NGOs, opportunistic infections, positive outlook, pre/post-test counseling, privilege, stigma, support, treatment access, United States, working in HIV/AIDS community

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Proscovia, age 55 / Tororo, Uganda

December 1, 2017 by admin

  For a long time, I have been working with the media. I have been writing my stories, and that’s how I’ve been getting support. That has allowed me to be what I am today. I trained as teacher, and so at a teacher’s college I was taking charge of adolescent youth, and that was […]

Categories: Africa, Age 55-59, Female • Tags: ACTIVISM, advocacy, caregiving, children/parenthood, class, Corruption, dating, disclosure, domestic violence, employment discrimination, employment/retirement, faith/spirituality, family, finances, grandchildren, helping others, Housing, inheritance/wills, intergenerational, isolation, married/life partner(s), NGOs, nutrition, opportunistic infections, pre/post-test counseling, side effects, stigma, stress, support, treatment access, treatment adherence, Uganda, Viral load/”undetectable”, World AIDS Day

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Jesse, age 59 / Ellicot City, Maryland, USA

June 9, 2017 by admin

  I was aware that I was likely positive. My late partner died of AIDS in 1985, and I am very certain that I had a transmission in about September of 1982 because I had a sexual encounter with my partner and the immediate biological response was a classic transmission response. And those symptoms were […]

Categories: Age 55-59, Male, North America • Tags: ACTIVISM, advocacy, AZT/pre-"cocktail" medications, caregiving, Caring for Older Adults, coordinated care, death/dying, doctor/patient relationship, drug interactions, employment discrimination, faith/spirituality, family, finances, gratitude, heart health, HIV & the law, kidney health, long-range thinking, long-term survivors, married/life partner, personalized treatment, polypharmacy, serodiscordant couple, Social Security/Medicare, support, United States

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Ron, age 66/ District of Columbia, USA

December 1, 2016 by admin

I was suicidal when I was thirteen. Because I was gay, or “sissy” as they used to say in those days. I was actually planning how I was gonna do it, and I heard this voice in my head that said, “Don’t do it. Wait ‘til you get older. Things will be different.” I was […]

Categories: Age 65-69, Male, North America • Tags: alternative medicine, AZT/pre-"cocktail" medications, cancer, faith/spirituality, meditation, nutrition, positive outlook, suicide, support groups, thrombosis/blood clot, treatment access, United States

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Olive, age 53/ Saint Catherine, Jamaica

December 1, 2016 by admin

I actually don’t do “My Story.” I don’t do testimonies. People like other people’s business, so it’s not what I do. It’s about the issues. The challenges of really living and coping, and serving, and supporting, and peer needs and so on. Yeah.  It’s fine what we are going to be doing, in that it […]

Categories: Age 50-54, Female, North America • Tags: celibacy, dating, disclosure, doctor/patient relationship, employment/retirement, faith/spirituality, family, helping others, HIV/AIDS community dynamics, HIV/AIDS education, intergenerational, Jamaica, life experience/age as an asset, pre/post-test counseling, sex/sexuality, stigma, support groups, treatment a, working in HIV/AIDS community

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JP, age 52 /Namibia and Vattholma, Sweden

December 1, 2016 by admin

My partner at the time was having problems with his eyes. I had been speaking to him for some time about getting tested together. I said to him, “It’s time, now. I’m not suggesting any more – it’s time.” When he tested positive, I said, “Forget the test. Just do my CD4 count.” But they […]

Categories: Africa, Age 50-54, Europe, Male • Tags: ACTIVISM, advocacy, CD4 count, clinical trials, death/dying, faith/spirituality, kidney health, liver health, married/life partner(s), medication, Namibia, personalized treatment, side effects, Sweden, treatment access, Viral load/”undetectable”, working in HIV/AIDS community

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Gerome, age 51 / Abbotsford, Australia

December 15, 2014 by admin

I think that my story is personal, it’s unique, and it is not tragic. And, I think it’s something that is probably a little bit different from other people’s stories, because I took it more as a relief that I don’t have to fear HIV anymore. I don’t have to – there was no fear […]

Categories: Age 50-54, Asia-Pacific, Male • Tags: Australia, celibacy, dating/relationships, disclosure, faith/spirituality, family, fear of transmission, France, Healthcare access, homophobia, love, Philippines, pre/post-test counseling, Recent diagnosis, relief, serodiscordant couple, sex/sexuality, stigma, Tanzania, treatment access, Viral load/”undetectable”

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Dave, 68 / California, USA

December 2, 2014 by admin

We got kicked out of our church. We got kicked out of our small group. The pastor was in visiting me when the doctor told me, and he told his wife. And so we ended up having to leave the church, and then about a year later we walked into our small group that we […]

Categories: Age 65-69, Male, North America • Tags: faith/spirituality, helping others, married/life partner, stigma, support, support group, United States

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Luwiza, age 51 / Lusaka, Zambia

December 1, 2014 by admin

Despite the health personnel saying that, “You isolate her,” my sister was there for me. My mother was there. Would sleep in the same room. My sister would be next to me on the same bed, you know. And that helped a lot. Because when your close relatives neglect you: Oooh! That is the worst […]

Categories: Africa, Age 50-54, Female • Tags: ACTIVISM, advocacy, children/parenthood, cost of treatment, employment/retirement, exercise/fitness, faith/spirituality, family, grandchildren, helping others, HIV/AIDS myths, keeping busy, NGOs, stigma, support, treatment access, Zambia

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Ella, age “nearly 50” / Selangor, Malaysia

December 1, 2014 by admin

In year 2003 I already need to be on medications, but at that particle of time, that we need to pay about 1,000 ringget Malaysia, and my salary is less than 1,000. So… I, I stop seeing the doctor because the doctor says, “You need to be on medication.” I rather, you know, feed my […]

Categories: Age 50-54, Asia-Pacific, Female • Tags: children/parenthood, cost of treatment, death/dying, faith/spirituality, grandchildren, liver health, Malaysia, support, treatment access, Tuberculosis

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Deloris, age 54 / New Jersey, “Jamerican” (USA & Jamaica)

December 1, 2014 by admin

I am very fortunate.  I’ve been able to educate myself to the graduate level.  I hold down a really decent job.  I make, in nonprofit, nonprofit-decent money. (Laughs) That’s a disclaimer. I think to live with HIV you have to have a lot of support.  And if they’re not coming from your family? You have […]

Categories: Age 50-54, Female, North America • Tags: Art/creativity, children/parenthood, companionship, dating/relationships, faith/spirituality, fear, grandchildren, HIV/AIDS education, isolation/loneliness, Jamaica, keeping busy, support, trauma, United States, Work/Career, working in HIV/AIDS community

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