The Graying of AIDS

Stories From An Aging Pandemic

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Sebastian, age 65 / Harare, Zimbabwe

December 3, 2017 by admin

I remember it was about 15 years ago. I was constantly sick and I didn’t know what was wrong with me. When I was hospitalized for the last time, when I was very, very ill, it was a teaching hospital. A group of students surrounded me and they were asked by a senior doctor […]

Categories: Africa, Age 65-69, Male • Tags: advocacy, ageism, burial, caregiving, Caring for Older Adults, children/parenthood, cost of treatment, death/dying, dignity/respect, disclosure, doctor/patient relationship, family, grandchildren, helping others, HIV/AIDS education, HIV/AIDS myths, intergenerational, life experience/age as an asset, married/life partner(s), moving home, pre/post-test counseling, rural health, stigma, stress, support groups, treatment access, Zimbabwe

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Proscovia, age 55 / Tororo, Uganda

December 1, 2017 by admin

For a long time, I have been working with the media. I have been writing my stories, and that’s how I’ve been getting support. That has allowed me to be what I am today. I trained as teacher, and so at a teacher’s college I was taking charge of adolescent youth, and that was […]

Categories: Africa, Age 55-59, Female • Tags: ACTIVISM, advocacy, caregiving, children/parenthood, class, Corruption, dating, disclosure, domestic violence, employment discrimination, employment/retirement, faith/spirituality, family, finances, grandchildren, helping others, Housing, inheritance/wills, intergenerational, isolation, married/life partner(s), NGOs, nutrition, opportunistic infections, pre/post-test counseling, side effects, stigma, stress, support, treatment access, treatment adherence, Uganda, Viral load/”undetectable”, World AIDS Day

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Susan, age 54 / New York, USA

June 19, 2017 by admin

I guess I don’t even think about it too much anymore. In the first few years? Like, almost 24/7, it was something that was on my mind: am I gonna be around for my kids? I didn’t even think about grandkids at that time. And I always worried that my daughter would […]

Categories: Age 50-54, Female, North America • Tags: advocacy, anger, cancer, caregiving, CD4 count, children/parenthood, death/dying, disclosure, employment/retirement, family, grandchildren, helping others, HIV/AIDS education, intergenerational, isolation, life experience/age as an asset, married/life partner(s), mother-to-child transmission, nutrition, positive outlook, stress, stroke, support, United States, Women & Girls, working in HIV/AIDS community

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Rick, age 60 / Pretoria, South Africa

June 8, 2017 by admin

Originally I was from Scotland. I’ve been in South Africa now for 36 years. I think I befriended my little virus in South Africa – that’s 30 years ago. AIDS in South Africa in that time was very different to what it is now. It was bad. I worked with an organization who […]

Categories: Africa, Age 60-64, Europe, Male • Tags: ACTIVISM, advocacy, cancer, caregiving, coping, dating, death/dying, disclosure, employment/retirement, family, grief/loss, married/life partner, opportunistic infections, PCP, positive outlook, Scotland, South Africa, support groups, thrombosis/blood clot, weight, working in HIV/AIDS community

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Hope, age 62/Francistown, Botswana

June 6, 2017 by admin

I was working with a family, and somebody had some kind of blisters that week. I was in Australia then. I was away from home, I was away from a lot of people. I was alone. Even though I was in denial, I knew what this was, because I had been unwell. I don’t remember […]

Categories: Africa, Age 60-64, Female • Tags: ageism, Art/creativity, Australia, body image, Botswana, caregiving, Caring for Older Adults, class, dating, death/dying, disclosure, doctor/patient relationship, employment/retirement, family, grief/loss, healthcare professional, helping others, HIV & the law, HIV/AIDS education, Immigration, isolation, married/life partner, Neuropathy, pain, polypharmacy, sex/sexuality, shingles, side effects, stigma, stress, support, treatment access, United States, weight

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Jesus, age 56/Mexico & California, USA

June 5, 2017 by admin

I arrived to USA in 1984. I knew what started to be in the news, everything about the gay cancer and things. Honestly I was not jumping from bed to bed or things like that – I was kind of “a good boy” – but still, I was having sex. And I was really […]

Categories: Age 55-59, Male, North America, uncategorized • Tags: ageism, alternative medicine, dating, denial, dignity/respect, disclosure, helping others, HIV & the law, Housing, Immigration, Kaposi sarcoma, long-term survivors, Mexico, Neuropathy, pain, stress, support, United States

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Nomampondo, age 52 / Johannesburg, South Africa

December 2, 2016 by admin

At least be there for the mothers! I always tell my daughter that she saw me struggling in front of her, bringing them up as a single parent. She has to be there for their mother– for her kids as well. We were the faces of AIDS in the beginning, during those difficult […]

Categories: Africa, Age 50-54, Female • Tags: advocacy, ageism, caregiving, confidentiality, death/dying, disclosure, doctor/patient relationship, employment discrimination, family, guilt, memory/brain health, Neuropathy, night sweats, polypharmacy, shingles, side effects, South Africa, stigma, TB, treatment access

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Loon, age 50, / Manipur, India

December 2, 2016 by admin

From 1983 to 1997, I am fully on heroin in between lots of rehab and lots of jail and lots of anything. From 1997 to about five, six, seven years, I’m totally on abstinence. After that, I was thinking to myself, total abstinence is like sitting all the time – like this… Sometimes I want […]

Categories: Age 50-54, Asia-Pacific, Male • Tags: disclosure, India, jail/incarceration, stigma, substance use/recovery

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Olive, age 53/ Saint Catherine, Jamaica

December 1, 2016 by admin

I actually don’t do “My Story.” I don’t do testimonies. People like other people’s business, so it’s not what I do. It’s about the issues. The challenges of really living and coping, and serving, and supporting, and peer needs and so on. Yeah. It’s fine what we are going to be doing, in that it […]

Categories: Age 50-54, Female, North America • Tags: celibacy, dating, disclosure, doctor/patient relationship, employment/retirement, faith/spirituality, family, helping others, HIV/AIDS community dynamics, HIV/AIDS education, intergenerational, Jamaica, life experience/age as an asset, pre/post-test counseling, sex/sexuality, stigma, support groups, treatment a, working in HIV/AIDS community

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Tendayi, age 50/ Harare, Zimbabwe

December 1, 2016 by admin

I was a model, I ran the largest modeling agency in Zimbabwe. And I looked the part. Coming from high society, it was rare to find people of my type talking about HIV or to come out in the open to say they were HIV-positive. We have public figures, these celebrities. How come we don’t […]

Categories: Africa, Age 50-54, Female • Tags: children/parenthood, class, disclosure, family, stigma, Zimbabwe

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Neale, age 54, and Max, age 60 / Melbourne, Australia

November 30, 2015 by admin

Neale: I met this man while we were conversing online. It was really a meeting of minds on a whole lot of levels. I could sense that he was very open about his status. He worked for an organization where he was identifiable as a positive man, and I was intrigued with how he […]

Categories: Age 50-54, Age 60-64, Couple, Male • Tags: Australia, dating, disclosure, fear, fear of transmission, libido, life experience/age as an asset, love, positive partners, sex/sexuality

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Gerome, age 51 / Abbotsford, Australia

December 15, 2014 by admin

I think that my story is personal, it’s unique, and it is not tragic. And, I think it’s something that is probably a little bit different from other people’s stories, because I took it more as a relief that I don’t have to fear HIV anymore. I don’t have to – there was no fear […]

Categories: Age 50-54, Asia-Pacific, Male • Tags: Australia, celibacy, dating/relationships, disclosure, faith/spirituality, family, fear of transmission, France, Healthcare access, homophobia, love, Philippines, pre/post-test counseling, Recent diagnosis, relief, serodiscordant couple, sex/sexuality, stigma, Tanzania, treatment access, Viral load/”undetectable”

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