The Graying of AIDS

Stories From An Aging Pandemic

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Phumzile, age 52 / Johannesburg, South Africa

June 5, 2018 by admin

We need to remember that HIV is a justice issue. If we don’t deal with the structural injustices, people will continue being vulnerable to HIV and AIDS. The religious community has a responsibility to spread positive messages and if we still have negative messages within our religious contexts, I believe that those messages […]

Categories: Africa, Age 50-54, Female • Tags: advocacy, anger, arthritis, body image, caregiving, Caring for Older Adults, children/parenthood, dating, death/dying, depression, diabetes, dignity/respect, doctor/patient relationship, employment/retirement, exercise/fitness, faith/spirituality, family, finances, helping others, HIV/AIDS education, human rights, intergenerational, justice, life experience/age as an asset, married/life partner(s), menopause, positive outlook, pre/post-test counseling, sex/sexuality, side effects, South Africa, stigma, stress, support, treatement access, weight, Women & Girls

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Sebastian, age 65 / Harare, Zimbabwe

December 3, 2017 by admin

I remember it was about 15 years ago. I was constantly sick and I didn’t know what was wrong with me. When I was hospitalized for the last time, when I was very, very ill, it was a teaching hospital. A group of students surrounded me and they were asked by a senior doctor […]

Categories: Africa, Age 65-69, Male • Tags: advocacy, ageism, burial, caregiving, Caring for Older Adults, children/parenthood, cost of treatment, death/dying, dignity/respect, disclosure, doctor/patient relationship, family, grandchildren, helping others, HIV/AIDS education, HIV/AIDS myths, intergenerational, life experience/age as an asset, married/life partner(s), moving home, pre/post-test counseling, rural health, stigma, stress, support groups, treatment access, Zimbabwe

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Proscovia, age 55 / Tororo, Uganda

December 1, 2017 by admin

For a long time, I have been working with the media. I have been writing my stories, and that’s how I’ve been getting support. That has allowed me to be what I am today. I trained as teacher, and so at a teacher’s college I was taking charge of adolescent youth, and that was […]

Categories: Africa, Age 55-59, Female • Tags: ACTIVISM, advocacy, caregiving, children/parenthood, class, Corruption, dating, disclosure, domestic violence, employment discrimination, employment/retirement, faith/spirituality, family, finances, grandchildren, helping others, Housing, inheritance/wills, intergenerational, isolation, married/life partner(s), NGOs, nutrition, opportunistic infections, pre/post-test counseling, side effects, stigma, stress, support, treatment access, treatment adherence, Uganda, Viral load/”undetectable”, World AIDS Day

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Susan, age 54 / New York, USA

June 19, 2017 by admin

I guess I don’t even think about it too much anymore. In the first few years? Like, almost 24/7, it was something that was on my mind: am I gonna be around for my kids? I didn’t even think about grandkids at that time. And I always worried that my daughter would […]

Categories: Age 50-54, Female, North America • Tags: advocacy, anger, cancer, caregiving, CD4 count, children/parenthood, death/dying, disclosure, employment/retirement, family, grandchildren, helping others, HIV/AIDS education, intergenerational, isolation, life experience/age as an asset, married/life partner(s), mother-to-child transmission, nutrition, positive outlook, stress, stroke, support, United States, Women & Girls, working in HIV/AIDS community

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Kim, age 59/Melbourne, Australia

June 7, 2017 by admin

I first learned I was positive in 1994. I was unwell and went to a friend of mine who was my doctor as well, and he just threw every test at me possible, and a couple of weeks later he hadn’t got back to me, so I rang him. I just happened to be […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: advocacy, Art/creativity, Australia, caregiving, children/parenthood, doctor/patient relationship, family, helping others, HIV/AIDS community dynamics, HIV/AIDS education, pre/post-test counseling, stigma, Women & Girls, working in HIV/AIDS community

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Tendayi, age 50/ Harare, Zimbabwe

December 1, 2016 by admin

I was a model, I ran the largest modeling agency in Zimbabwe. And I looked the part. Coming from high society, it was rare to find people of my type talking about HIV or to come out in the open to say they were HIV-positive. We have public figures, these celebrities. How come we don’t […]

Categories: Africa, Age 50-54, Female • Tags: children/parenthood, class, disclosure, family, stigma, Zimbabwe

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Betti, age 51 / Abidjan, Ivory Coast

July 14, 2016 by admin

I discovered my status after I gave birth, in 1997. I was sick and I went to see a doctor at the hospital. I asked for a checkup and they told me that I had HIV. The child was breastfed, and I didn’t know, so she got contaminated. It was already difficult for me to […]

Categories: Africa, Age 50-54, Female • Tags: children/parenthood, cost of treatment, denial, family, fatigue, grief/loss, Ivory Coast, libido, married/life partner(s), menopause, mother-to-child transmission, NGOs, positive outlook, sex/sexuality, stress, support, treatment access

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Jane, age 57 / Auckland, New Zealand

December 10, 2014 by admin

Sometimes, I allow myself to have a wallow day. But it doesn’t happen much now. It used to happen. I cried a lot in the first years. I find now that it’s very difficult to cry. I seem to have hardened quite a lot. And I guess it’s just about, you know, you see a […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: AZT/early medications, children/parenthood, dating/relationships, denial, disclosure, family, grandchildren, grief/loss, helping others, insecurity, isolation/loneliness, Lipodystrophy, moving home, New Zealand, positive partners, weight/body image, Work/Career

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Michael, age 62 / Auckland, New Zealand

December 2, 2014 by admin

I was diagnosed in September 2010. I’ve only had it 4 years. It couldn’t have been much earlier than that. Because I was in a relationship, and then after that relationship finished I got promiscuous and thought to see if I still had it at my age. And yeah, then started experimenting again. I’m a […]

Categories: Age 60-64, Asia-Pacific, Male • Tags: children/parenthood, disclosure, family, grandchildren, HIV, HIV/AIDS education, New Zealand, Recent diagnosis, sex/sexuality, stigma, support

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Suzanne, age 59 / Melbourne, Australia

December 1, 2014 by admin

I first learned that I was HIV-positive in a letter from a doctor. I’d been working in a little hospital in rural Africa, but I had to go away somewhere else to find a GP to take my blood, because there was just the risk of too much scrutiny, and confidentiality – I didn’t feel […]

Categories: Age 55-59, Asia-Pacific, Female • Tags: Australia, children/parenthood, China, dating/relationships, disclosure, family, healthcare professional, HIV & the law, HIV/AIDS community dynamics, HIV/AIDS education, Immigration, pre/post-test counseling, support, Zimbabwe

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Luwiza, age 51 / Lusaka, Zambia

December 1, 2014 by admin

Despite the health personnel saying that, “You isolate her,” my sister was there for me. My mother was there. Would sleep in the same room. My sister would be next to me on the same bed, you know. And that helped a lot. Because when your close relatives neglect you: Oooh! That is the worst […]

Categories: Africa, Age 50-54, Female • Tags: ACTIVISM, advocacy, children/parenthood, cost of treatment, employment/retirement, exercise/fitness, faith/spirituality, family, grandchildren, helping others, HIV/AIDS myths, keeping busy, NGOs, stigma, support, treatment access, Zambia

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Stephen, age 59 / Kampala, Uganda

December 1, 2014 by admin

When I started working in 1984 as a doctor, I saw so many people whom I now know had AIDS, but we were never trained – it was not there during that time from ’79 up to ’84, when I went through the medical school. So, I worked – I’ve worked with hundreds, thousands. I’ve […]

Categories: Africa, Age 55-59, Male • Tags: Art/creativity, children/parenthood, death/dying, depression, fear, healthcare professional, memory/brain health, Occupational HIV Transmission, privilege, Uganda, working in HIV/AIDS community

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