The Graying of AIDS

Stories From An Aging Pandemic

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Phumzile, age 52 / Johannesburg, South Africa

June 5, 2018 by admin

We need to remember that HIV is a justice issue. If we don’t deal with the structural injustices, people will continue being vulnerable to HIV and AIDS. The religious community has a responsibility to spread positive messages and if we still have negative messages within our religious contexts, I believe that those messages […]

Categories: Africa, Age 50-54, Female • Tags: advocacy, anger, arthritis, body image, caregiving, Caring for Older Adults, children/parenthood, dating, death/dying, depression, diabetes, dignity/respect, doctor/patient relationship, employment/retirement, exercise/fitness, faith/spirituality, family, finances, helping others, HIV/AIDS education, human rights, intergenerational, justice, life experience/age as an asset, married/life partner(s), menopause, positive outlook, pre/post-test counseling, sex/sexuality, side effects, South Africa, stigma, stress, support, treatement access, weight, Women & Girls

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Sebastian, age 65 / Harare, Zimbabwe

December 3, 2017 by admin

I remember it was about 15 years ago. I was constantly sick and I didn’t know what was wrong with me. When I was hospitalized for the last time, when I was very, very ill, it was a teaching hospital. A group of students surrounded me and they were asked by a senior doctor […]

Categories: Africa, Age 65-69, Male • Tags: advocacy, ageism, burial, caregiving, Caring for Older Adults, children/parenthood, cost of treatment, death/dying, dignity/respect, disclosure, doctor/patient relationship, family, grandchildren, helping others, HIV/AIDS education, HIV/AIDS myths, intergenerational, life experience/age as an asset, married/life partner(s), moving home, pre/post-test counseling, rural health, stigma, stress, support groups, treatment access, Zimbabwe

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Proscovia, age 55 / Tororo, Uganda

December 1, 2017 by admin

For a long time, I have been working with the media. I have been writing my stories, and that’s how I’ve been getting support. That has allowed me to be what I am today. I trained as teacher, and so at a teacher’s college I was taking charge of adolescent youth, and that was […]

Categories: Africa, Age 55-59, Female • Tags: ACTIVISM, advocacy, caregiving, children/parenthood, class, Corruption, dating, disclosure, domestic violence, employment discrimination, employment/retirement, faith/spirituality, family, finances, grandchildren, helping others, Housing, inheritance/wills, intergenerational, isolation, married/life partner(s), NGOs, nutrition, opportunistic infections, pre/post-test counseling, side effects, stigma, stress, support, treatment access, treatment adherence, Uganda, Viral load/”undetectable”, World AIDS Day

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Rick, age 60 / Pretoria, South Africa

June 8, 2017 by admin

Originally I was from Scotland. I’ve been in South Africa now for 36 years. I think I befriended my little virus in South Africa – that’s 30 years ago. AIDS in South Africa in that time was very different to what it is now. It was bad. I worked with an organization who […]

Categories: Africa, Age 60-64, Europe, Male • Tags: ACTIVISM, advocacy, cancer, caregiving, coping, dating, death/dying, disclosure, employment/retirement, family, grief/loss, married/life partner, opportunistic infections, PCP, positive outlook, Scotland, South Africa, support groups, thrombosis/blood clot, weight, working in HIV/AIDS community

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Hope, age 62/Francistown, Botswana

June 6, 2017 by admin

I was working with a family, and somebody had some kind of blisters that week. I was in Australia then. I was away from home, I was away from a lot of people. I was alone. Even though I was in denial, I knew what this was, because I had been unwell. I don’t remember […]

Categories: Africa, Age 60-64, Female • Tags: ageism, Art/creativity, Australia, body image, Botswana, caregiving, Caring for Older Adults, class, dating, death/dying, disclosure, doctor/patient relationship, employment/retirement, family, grief/loss, healthcare professional, helping others, HIV & the law, HIV/AIDS education, Immigration, isolation, married/life partner, Neuropathy, pain, polypharmacy, sex/sexuality, shingles, side effects, stigma, stress, support, treatment access, United States, weight

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Nomampondo, age 52 / Johannesburg, South Africa

December 2, 2016 by admin

At least be there for the mothers! I always tell my daughter that she saw me struggling in front of her, bringing them up as a single parent. She has to be there for their mother– for her kids as well. We were the faces of AIDS in the beginning, during those difficult […]

Categories: Africa, Age 50-54, Female • Tags: advocacy, ageism, caregiving, confidentiality, death/dying, disclosure, doctor/patient relationship, employment discrimination, family, guilt, memory/brain health, Neuropathy, night sweats, polypharmacy, shingles, side effects, South Africa, stigma, TB, treatment access

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JP, age 52 /Namibia and Vattholma, Sweden

December 1, 2016 by admin

My partner at the time was having problems with his eyes. I had been speaking to him for some time about getting tested together. I said to him, “It’s time, now. I’m not suggesting any more – it’s time.” When he tested positive, I said, “Forget the test. Just do my CD4 count.” But they […]

Categories: Africa, Age 50-54, Europe, Male • Tags: ACTIVISM, advocacy, CD4 count, clinical trials, death/dying, faith/spirituality, kidney health, liver health, married/life partner(s), medication, Namibia, personalized treatment, side effects, Sweden, treatment access, Viral load/”undetectable”, working in HIV/AIDS community

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Tendayi, age 50/ Harare, Zimbabwe

December 1, 2016 by admin

I was a model, I ran the largest modeling agency in Zimbabwe. And I looked the part. Coming from high society, it was rare to find people of my type talking about HIV or to come out in the open to say they were HIV-positive. We have public figures, these celebrities. How come we don’t […]

Categories: Africa, Age 50-54, Female • Tags: children/parenthood, class, disclosure, family, stigma, Zimbabwe

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Betti, age 51 / Abidjan, Ivory Coast

July 14, 2016 by admin

I discovered my status after I gave birth, in 1997. I was sick and I went to see a doctor at the hospital. I asked for a checkup and they told me that I had HIV. The child was breastfed, and I didn’t know, so she got contaminated. It was already difficult for me to […]

Categories: Africa, Age 50-54, Female • Tags: children/parenthood, cost of treatment, denial, family, fatigue, grief/loss, Ivory Coast, libido, married/life partner(s), menopause, mother-to-child transmission, NGOs, positive outlook, sex/sexuality, stress, support, treatment access

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Luwiza, age 51 / Lusaka, Zambia

December 1, 2014 by admin

Despite the health personnel saying that, “You isolate her,” my sister was there for me. My mother was there. Would sleep in the same room. My sister would be next to me on the same bed, you know. And that helped a lot. Because when your close relatives neglect you: Oooh! That is the worst […]

Categories: Africa, Age 50-54, Female • Tags: ACTIVISM, advocacy, children/parenthood, cost of treatment, employment/retirement, exercise/fitness, faith/spirituality, family, grandchildren, helping others, HIV/AIDS myths, keeping busy, NGOs, stigma, support, treatment access, Zambia

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Stephen, age 59 / Kampala, Uganda

December 1, 2014 by admin

When I started working in 1984 as a doctor, I saw so many people whom I now know had AIDS, but we were never trained – it was not there during that time from ’79 up to ’84, when I went through the medical school. So, I worked – I’ve worked with hundreds, thousands. I’ve […]

Categories: Africa, Age 55-59, Male • Tags: Art/creativity, children/parenthood, death/dying, depression, fear, healthcare professional, memory/brain health, Occupational HIV Transmission, privilege, Uganda, working in HIV/AIDS community

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Rev. Gideon, age 53 / Kampala, Uganda

November 6, 2014 by admin

So the first question was: Are you going to keep quiet or are you going to tell someone? It took 20 minutes for me to disclose. When I was in the counselor’s room, the counselor gave me the results in a stigmatizing way. He said, “Man of God, what are you going to do?” And […]

Categories: Africa, Age 50-54, Male • Tags: Uganda

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